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Welcome to Unremarkable Me:

My EDS Journey Through Resilience, Reflection, and Connection

We live in extraordinary times...

...A world spinning at a dizzying pace, reshaping itself faster than ever. For many, the COVID-19 pandemic marked the moment when life’s rhythm truly shifted. But if I’m being honest, I think we were already speeding toward Calamity Junction long before that fateful year. That, dear reader, is a story for another time.

In this relentless race to keep up, the pressure to move in sync with society’s tempo can feel impossible—especially for those of us living with chronic conditions. Unremarkable Me is my way of pressing pause, a space where we can step off the treadmill and find a moment of calm.

As someone living with Chiari Malformation, EDS, POTS, and MCAS, I’ve learned that life doesn’t always follow the standard roadmap. It’s not about chasing the world’s pace—it’s about adapting to our own, celebrating the small victories, and discovering joy in life’s unexpected corners.
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This blog isn’t just about surviving; it’s about truly living—finding beauty, humor, and connection despite the challenges. Whether it’s learning to laugh after backing into a display of herbal remedies (Gin Gins were fine, by the way) or navigating the complexities of doctor-patient relationships, I’m here to share my journey and, hopefully, create a space for yours too.

WHAT YOU'LL FIND HERE

Honest
Conversation

I’ll be tackling some tough questions about living with chronic illness. Why does it often feel like there’s no place for us in the “fast lane”? How can we ensure our voices are heard in a healthcare system that sometimes seems built for a different world? And how do we turn our challenges into catalysts for positive change?

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Why Unremarkable Me?

Because in a world obsessed with extraordinary, it’s often the “unremarkable” moments that hold the most power. A quiet victory over a bad day, the unexpected kindness of a stranger, the resilience we find in ourselves when things get tough—these are the moments I want to celebrate.

 

Together, we’ll find strength in our shared experiences, joy in our community, and hope in the stories we tell. This is more than a blog; it’s a reminder that even in the face of life’s challenges, we are never alone.

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© 2035  Unremarkable Me

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